Provides general information and a personal account, including pictures and X-rays. Also offers patient contact and an email discussion group.

Information about NORD, its programs, special events and the variety of services offered. Includes a rare disease, organization and orphan drug database. Diseases are listed alphabetically for easy searching.

Information on more than 6000 rare diseases, including current research, publications from scientific and medical journals, completed research, ongoing studies, and patient support groups.

A non-profit organization dedicated to providing emotional and informational support to patients and their families with Wegener's granulomatosis.